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Comment, with subtitled news item. The aftermath of the TV program on the BBC that highlighted appalling neglect by the British NHS services, and forced the BMA to apologise for their neglect of deaf patients (Hospitals/OOH/etc STILL haven't apologised), was great PR for Welsh campaigners, but, after watching the program, what did we actually read IN to the deaf responses we saw.
A bit of BSL awareness via a class (Stock inclusion if 'Deaf' are talked about, but ignoring 85% of us, the program was about deaf/HI access, NOT just BSL access which skewed the issue, and point), and a deaf woman really really worried that she has to rely on her Mum for everything as the NHS ignored her right to access, and frightened if her Mum was ill she wouldn't have a clue what was happening, to her as a Mum herself or her daughter. (Why do we never see a father ?). She doesn't have to rely on her MUM why didn't someone enlighten her ? The law is there ? She is going to need that law in the future, as she does NOW.
OK look at it this way, the woman on the program was adult deaf, with a child, but STILL reliant on a parent for communication support, it says volumes about the complete failure of deaf charities to do anything at all, yet, we saw charity highlighted as 'raising the issue', a conundrum perhaps, they didn't raise it with the deaf woman ! We could well ask, WHY, THEY didn't support her, they found her for the TV program easy enough.
You cannot blame the BBC (we are indebted to them for this news item), regardless what individual campaigners do, (And it was individual campaigners responsible for this news item) , they know no-one will care unless there is some media Kudos about them, so, charities, despite completely failing to educate this woman in campaigning for her rights, or doing the real awareness, (Or her Mum who blindly accepted it was her job), took the headlines. OK back to realism now the photo shoots have gone.
No charity in the UK has done enough to educate deaf people, either to campaign for themselves, or to help them get their rights, mostly it is sporadic disability areas and Blind areas doing it. Grass root are ... where we don't know, we know they don't campaign for themselves. Charities seek only to get funds for 'support' they provide, with no emphasis on empowerment at all. Charities for the Deaf and HI must today, be totally ashamed at their inability to consult any deaf/HI people, or to engage with them. This BBC program must be a PR godsend to them for all the wrong reasons..
Support workers must also be held to account for failing to pass on viable contacts, so deaf have to shop around on their own, often from NHS websites that are designed to prevent deaf finding help, some had data from 2003. Are BSL terps withholding info for self-job protection ? trying to be Social workers by default ? are charities doing the same to restrict choice to them only ? we need to know why they won't divulge what they know to us, and to the parent of this deaf woman. What do free lance terps think ? a law to themselves ?
How can we design or set up any sort of 'application', so deaf can log in and find things for themselves ? Knowledge is power ? so charity and terps keep it in-house ? Vested interest ensuring we are a captive customer base ? Why are the ASLI NOT telling us what we need to know ? Amazingly some said it was 'customer confidentiality', RUBBISH ! to prevent them seeking support themselves ? More like Terps keeping it to themselves.
Why this woman is an full grown adult and still parent reliant and with no idea where to get help still, is a failure in major terms, do they go through deaf education not knowing where to obtain help too ? what do we fund charities for, support ? erm.. they didn't support this woman. Yes the NHS is at major fault, but the fact they continually are allowed to law break with charity doing nothing, isn't good either.
We must ask WHY charities and others do NOT educate PARENTS as well as deaf people of the right way to do things ? They go on for YEARS the same way ? ye GODS !!! One can understand a parent wanting to help her child, or a child assuming that is the way things are, but not to carry on full time without asking for alternatives or the deaf person seeking alternatives, with thus no demand and inertia, this allowed an entire NHS system to withdraw legal help. If the deaf cannot, or will not campaign themselves, the parent or family must and the 'support system for want of a better name, has to start earning their funding. It looked like parents were part of the problem, not the solution, and were not aware enough of support systems themselves
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